Congenital Central Hypoventilation Syndrome (CCHS)
THERE IS NO CURE FOR CCHS. BUT WE ARE MAKING PROGRESS TOWARDS ONE EVERY SINGLE DAY.
We are a foundation and charity-funded organisation working Relentlessly to make breakthroughs in CCHS research, get treatments faster and find a Cure. 100% of donations go directly towards the mission of discovering, pursuing and creating treatments (and cures) for CCHS sufferers. Not a penny into administration or staffing. Inspired by the birth of a beautiful boy called Casper, born with CCHS and the most complex case of Neuroblastoma (a Cancer) Great Ormond Street Hospital had ever seen.
